It is important for Parkinson's patients to maintain a high comfort level while at home. Use these helpful tips to manage your healthcare at home, making it a more enjoyable place to live!  This invaluable information is provided by the APDA's National Resource Center for Rehabilitation.

Check out this wonderful organization's website APDA National Resource Center for Rehabilitation  …

"It is better to know some of the questions than all of the answers."

-- James Thurber, American writer

Funny thing about living with a movement disorder.  If we are not careful, the struggle involved can convince us that our lives are going to be small, cramped and painful.  We can become so discouraged we begin to make foregone conclusions about our lives.  And usually those…

Here is an excerpt from a wonderful article chock full of great ideas for caregivers.

Written by Lisa Bailey, a full time teacher and family caregiver, the article is featured on the Caregiver.com website.

"When my husband Phil’s colorectal cancer returned in October of 2006, this time in the liver and lungs, I found myself stressed to the max . . . . adding compassionate caregiving to my life’s work demands from me an…

Extra! Extra! Read all about Cervical Dystonia!  On March 28, The Baltimore Sun newspaper published a wonderful article about Linda Furiate, a woman who is living life to the fullest with Cervical Dystonia.  The feature tells the story of how Linda was diagnosed and what medical and personal resources she has used to triumph over this challenging disorder.  Cervical Dystonia changed Linda Furiate's life but didn't derail it.  To read about this…

When we become caregivers, it doesn't take long before we work up a list of things that could make life easier!

More sleep, great doctors, good in home health aides and expert treatment centers are all things caregivers consistently crave.  But while practical things are important, we can't forget to add spirituality and ritual to the roster, according to Rev. Sharon Leman MLA. …

Looking for the latest information about Dystonia, Alzheimer's Disease, Epilepsy, Pain, Stroke, Parkinson's Disease, Migraine and other medical conditions?  Sign up for a free subscription to Neurology Now Magazine (online)

Neurology Now will bring you news and thoughtful essays on how to live life to the fullest with a chronic illness.  One of the magazine's upcoming articles…

A special event for people living with Parkinson's Disease and Dystonia will be held this month in New York City.

"The Dystonia & Parkinson Patient Symposium for Patients and Caregivers" will be held Tues,, Feb. 28, 2012 from 8:45am-3:00pm at The Graduate Center, 365 Fifth Avenue, New York City 10176.  It is generously sponsored  by the Bachmann-Strauss Foundation.

The program will include the latest news about treatments, therapies, coping techniques and…

If you live with chronic illness or care for someone who does, check out Social Security's Compassionate Allowances program, an initiative designed to get benefits to seriously ill people as quickly as possible.

Compassionate Allowances is designed to fast-track the benefit approval process for people who live with a…

PEOPLE

Retreat for caregivers

By Paul E. Kandarian     OCTOBER 09, 2011

 

RETREATS FOR THOSE DEALING WITH ILLNESS: Who takes care of the caregiver? Lindsay McGrath hopes to provide answers at a retreat at Glastonbury Abbey…

It started six years ago, with a simple bike accident.  

“I was 14 at the time,” says Spokane Valley resident Megan Sargent. ”And about a week after that, my neck just snapped to the side.”

With her head torqued and locked on the right side, her doctor sent her home with some muscle relaxers. Assuming it was an isolated incident, Sargent and her family didn’t…

"Don't ask what the world needs.  Ask what makes you come alive, and go do it.  Because the world needs people who have come alive."  -- Howard Thurman, Theologian, Civil Rights Pioneer

Yesterday while checking my email, the browser on my computer screen popped up with a story about online shopping sites that will still deliver by Christmas.  The text was accompanied by a picture of a…

Billy McLaughlin was on top of the world in the late 1990's. A successful guitarist with thousands of fans, the Minnesota-based musician was a busy performer and recording artist. Then in 1998, the unthinkable happened. Billy's right hand began to spasm. His doctors eventually diagnosed focal dystonia. In time, his…